Season 1
Episode 0: Living at Risk
Susanna Smith, MPH
Episode Summary
In this episode of Genetic Frontiers, host, Susanna Smith, shares her personal story of living as a previvor of an incurable, genetic disease, which is part of the impetus for the podcast and at the center of a book she is working on.
Resources
American Society of Human Genetics. Genetic Information Non-discrimination Act (GINA).
SJ Smith. “Keeping Quiet About Genetic Risk.” Health Affairs podcast Narrative Matters. March 2023.